Alone?
So last week I went to the #survivor dinner, and I was telling the group I have a #relayforlife this Friday where I’m walking the survivor walk and hosting a #facial booth for majority of the night. I may or may not stay the whole night, depends on if I have a team. It made me realize how “alone” I am. I love my family and friends, but they didn’t personally walk in my shoes, and I get “it’s gone right?” a lot.
I’m not sure when I really started to let this bug me, but last fall (on way to 5 years clear) it started to really get to me. No one to talk to who wouldn’t tear up or glaze over. Mom and dad won’t talk about it much less consider going to one of the cancer conferences (even though they are about positive things and this whole experience we’ve been thinking positively, but I see where they are coming from). And now I have relay but no team. I was invited to someone else’s team in October, but I have no team. I miss the days where I had the pain, but I could still hang out with people and ignore it. Now the pains gone but it’s like this shadow is hovering and won’t go away. Aches and pains now turn into, could it be back? I’m supposed to call my doc for blood results, and I haven’t because I’m nervous something might show up and then I can’t go to camp. I’ve been tripping more often, and my mind immediately goes to, is a tumor growing in my spine causing numbness in my feet to cause my excessive tripping? Most likely it’s caused by not taking my thyroid meds because somehow, it’s all connected. If I ever get up that courage to find out my blood work results from my physical, I’ll mention it at that time.
Thankfully I have this new group I found through my fb online support group, and I’m now going to two different young adult survivor camps this summer :). One through “make-a-dream” in #Montana, an #adventure camp. Another with #FirstDescents in #Wyoming – #Kayaking! I will get the opportunity to socialize, meet others who have been in similar situation and learn something new 🙂 Nervous but very excited 🙂
Young adult cancer survivor dinner!
Im doing inbox dollars:
Surveys, play games for credits/cash redeem prizes. Watch videos and search on the inbox dollars search engine (instead of googling) earn small amounts of cash to build up 🙂 Does require $30 earned in order to redeem cash, but hey, do a little bit every day and earn a check at the end of the month for something fun! Or to pay off that remaining bill :-/
http://www.inboxdollars.com/?r=ref20436310
Mysurvey
I have to add you with your email, if you’re interested in doing surveys for sweepstakes/reward items, let me know! I initially signed up with this through inboxdollars.
And a grocery shopping app Ibotta:
With this app you can get rebates back on items you normally buy when shopping (ragu, noodles, milk, eggs, sunscreen, etc.) and much more! (clothing through online shopping). If you buy in person you take a photo of the objects barcode and the receipt, and “unlock” each item by learning a fact, taking a small quiz, or watching a video/commercial for Ibotta. Each month get those rebates back and you can track everything on the app as well as make your grocery list 🙂 it has long expiration dates, small weekend holiday dates, etc.
Code: phnodsi
If this doesn’t work let me know and ill upload the actual “link”
Night shift moments
Hello all! I’m in the middle of a 12-hour shift at the behavioral health facility I work, and I am enjoying an amazing small cheese and sausage pizza. I came in early to help fill a gap, so I’m doing 7 to 7 today. Didn’t get to start ordering my pizza until midnight, then after I placed one order, I realized the place was closed, so I called four different places and finally Dominos picked up!!!!! Five minutes to end of delivery hour, and thankfully they said it wasn’t a problem to drive out to me 🙂 Even made it before the half hour estimated time!
Today started out frustrating. I’m now on night two of four-night shifts. (11 till 7:30ish am). I was asked last night to come in early (at 7) and then found out I would have to work with an employee, who frankly I haven’t quite meshed with yet. Needless to say, after only a few hours of sleep and arriving here, it was a nerve-racking start to the shift. All in all, though, it was a good afternoon. Nothing dramatic happened, no incident reports had to be filed, and after this employee left, he called me to apologize. I’m still processing this, because it totally came out of the blue. You ever had that happen?
our unit specifically uses “DBT” or “dialectical behavioral therapy“. A lot of validation, talking over the events that led to the emotions, and events that may or may not have been the right choices, and more validation. The rest of the facility uses CBT, or cognitive behavioral therapy. They do a lot of ‘resisting urges’ while we are about the feelings that move behaviors and accepting responsibility for those actions. ” Yea you just did this. Now how can we change it so next time a different skill can be used, and we can change the situation?” I enjoy learning about new things and this DBT is definitely fascinating, feels like it should have been incorporated long ago, but hey better late than never!
What does this have to do with my fellow employee? Well, they called to tell me that after our shift processing it got him thinking and realized that he never really validated me and what I have to offer to the unit. My initial training was not the smoothest, and in a new unit with one fully trained staff to train a fast-growing team of new people, clashing occurred. <— takes guts to admit that people. Between our hiccups and now that some of the air has cleared, it won’t be so nerve-wracking to come to work with him anymore. Tonight was the first night we really worked as a team, and now I’m truly able to enjoy my pizza. 🙂
Inspired to write
Hello all! I’m not sure if I wrote about my initial chemo, but for anyone reading this I’ll give it a go along with suggestions on surviving it.
I’m back before July, who knew!
Spring reminders
My goodness. I’m not very good at this blogging thing. So much to say and too scattered to remember to write it down! Here’s a list of things I need to write about:
Fatigue sucks, especially when it takes over all free time.
I’m trying the exercise thing again! Hopefully it will stick.
I’m finally going to be an art therapist! (once I mail in my forms)
Technology and work frustrations. Joy
Still single, the joys of internet dating.
Enough for now, will return before summer 🙂











